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These injuries occur when there is damage to the spinal cord that disrupts nerve signals between the brain and the body. The consequences of an SCI go beyond the immediate physical impairments most able-bodied people think of. Every SCI survivor faces day-to-day challenges as well as long-term effects. These challenges vary depending on the level of the injury, the depth/location on the spinal cord, and the way the individual's body responds.
Navigating Physical Challenges with Spinal Cord Injury
One of the most noticeable impacts of an SCl is the change in mobility. Depending on the level and severity of the injury, individuals may experience partial or complete loss of movement and sensation below the injury site. Some SCls present as a loss of function in the hands but not the legs or as a decrease in balance. This can mean adapting to using a wheelchair, learning to use assistive devices, or relying on personal care assistants for daily tasks. Simple activities, such as getting dressed or moving from a bed to a chair, often require significant adjustments and planning. SCls can impact an individual's ability to control bathroom trips and can even make breathing and speaking difficult.
Adapting Home and Work Spaces for A Spinal Cord Injury
Accessibility is a crucial concern for those with SCls. Homes and workplaces may need modifications to accommodate new needs. This can include installing ramps, widening doorways, or adapting bathroom facilities. For many, this adaptation process can be both physically and financially taxing, as it involves not only logistical planning, but also potential costs for renovations and specialised equipment.
SCI Emotional and Social Adjustments
The emotional and social impact of SCls are profound. Many individuals face challenges related to body image, self-esteem, and identity. Social interactions can be affected as well, with individuals sometimes feeling isolated or misunderstood. It's essential for friends, family, and communities to offer support and understanding, recognizing that the emotional journey can be just as challenging as the physical one. Education and communication are our best strategies to combat these challenges.
Healthcare and Ongoing SCI Management
Living with an SCl often involves ongoing medical care. Regular visits to specialists, physical therapy, and managing secondary complications - pressure sores, urinary tract infections, and spasticity are often part of the routine. Navigating the healthcare system and coordinating care can be overwhelming and time-consuming, adding an additional layer of stress to daily life.
Finding Independence and Fulfillment
Despite these barriers, many individuals with SCIs lead independent and fulfilling lives. They pursue careers, engage in hobbies, and actively participate in their communities. Advancements in technology and adaptive equipment, along with strong support networks, play a crucial role in enhancing quality of life and promoting independence.
The vast majority of our culture and practices have developed without the consideration of SCls. Something as simple as a step up to get into a restaurant, or a piece of sidewalk that hasn't been repaired, may go completely unnoticed to most people. Spinal Cord Injury Awareness Month is an opportunity to increase our understanding of these daily challenges and to foster greater empathy to better support those affected. By educating ourselves and advocating for accessibility and inclusion, we can contribute to a more supportive and accommodating environment for everyone.
For those living with Spinal Cord Injury every day brings its own set of hurdles and triumphs. Recognizing and respecting their experiences helps build a more inclusive society, where every individual has the opportunity to thrive.
References
CONTRIBUTED BY: Rudi De Waal - Rehabilitation Specialist
